Learning to live with Celiac Disease one day at a time

Thursday, September 22, 2011

I think it's a down day today

It's been 9 months since my diagnosis and I thought it would get easier.  It has, in some ways.  I have a basic diet that I stick to, I fill in the gaps with new ideas, some that work and some that I won't touch again.  I love the black bean brownie recipe I found on the internet and have adjusted to my taste.  Tris' cousin sent me a super recipe for GF french bread, and my family loves it better than regular bread.  I try to eat eggs, although I think they're gross here for some reason, and eat a lot of pasta and home made soups.  Salads are quite often my mainstay during the day, and I like to make enough to last me for at least 3 or 4 days.  Beans, especially garbanzo and black, have become my new best friends in the kitchen.  I even have an iced lemon tea recipe that I make at least once a week that my family loves as well.  It's all good, but it's all happening in my own kitchen.  I'm beginning to really miss restaurants and other people's homes.  I love to entertain and it's a great challenge, one I am not afraid of, to feed others from my gluten-free (mostly) kitchen.  It just gets hard feeling like you're doing it on your  own.

I remember when I first started looking up Celiac disease on the internet.  There was one site that suggested a myriad of types of doctors and support that a Celiac needed to consider having in their lives.  The ones I remember are family doctor, specialist, nutritionist and psychologist.  I thought that the last one was kind of funny, but as time goes on, I can see why it could be a good idea.  There's a lot to sort out with being celiac, and the physical is just one of the pieces of the pie (gluten-free of course).  There's a lot of mind adjustments that have to occur, and it's difficult trying to do this on your own.

My week has been difficult, and I'm never sure if all the sleeping and illness is from something I ate or if it's from a bug that my body is fighting.  There's really no way to find out and so I eat extra-cautiously, extra bland, and I wait until this particular fight is over.

There are some really, really good, exciting things happening in my life right now, things that keep me focused on life and learning, and things that give me joy.  I am thankful for doors opening up in my life and am excited to see where life will take me in my future.  However, there's always that bit of me that holds back, always cautious, always wondering if I can make it through the day when my body is just wanting me to rest and my day is full and rest isn't an option.  There are the days when I truly feel 'frail,' a word that I used to jokingly bounce around with my husband when I wanted him to do something for me.  Now the word doesn't seem so funny.  There are other days when I feel strong, energetic, and like I can tackle the world.  Right now I'm wishing I had more of those days.

Thanks for reading.

Sunday, September 4, 2011

Maltodextrin and caramel colouring...yes or no?

Imagine my excitement when I did a little research online and discovered that I can eat maltodextrin.  For 8 months now I've avoided that ingredient diligently and it was great to discover that it's a possibility for Celiacs.  I have also bounced around and read a bit about caramel colour, and it seems that it's a possibility in some products as well.  Seems that anything with maltodextrin in it that is made in the US or Canada, unless otherwise labelled, is supposedly safe.  Apparently North American companies must specify if it is wheat-based maltodextrin or not.  If it's not, I'm told it's ok to assume it's made from a different source.
According to some sites (I haven't contacted any companies myself at this point), Coke and A&W rootbeer made in North America are also made from gluten-free caramel colour.  This is great, if this is true, and it makes me want to run out and buy myself a rootbeer NOW.  Admittedly, I tried.  I had figured that A&W would be an import here in Indonesia, but unfortunately there was Indonesian on the can and no import stickers.  I'd chance it with a NA rootbeer but not with an Asian one.  Another thing to look forward to when I visit Canada next summer, and in the meantime I will do a little more research on all of this.  If it is indeed true that I can eat North American made products that have maltodextrin in them, then that opens up a lot of potential for things like ranch dressing, french onion dip, etc.  However, I'm learning not to jump into things just because of a few things I've read, and so I continue to search the net.  It's interesting to see the different perspectives given from different countries (ie/ Britain vs. Australia vs. Canada & the US), but it's very confusing, too.
And so my googling continues...