What happens now?

So what happens now?  Almost 2 years of misdiagnosis in Indonesia, final diagnosis 6 weeks ago in Germany, tons of celiac information on the internet, no actual medical intervention available here...yet.  I have one nutritionist friend I can call on and who has helped me incredibly already, and I have an Indonesian internal specialist who is looking at my results.  I'm not sure what he'll be able to do because I'm pretty sure that he's not really familiar with this disease.  That was confirmed to me when he told me "Madam, you have a very rare disease."  I live in the land of white rice, and so yes, it is very rare here.  When you mention Celiac disease to any ex-pat here, their typical response is "my brother/sister/aunt/mother-in-law has the same.  They've learned to live with it just fine."

I have questions for those who are living with it just fine.  How did they get there?  When did they start feeling like they were improving?  One friend told me that her brother took one month to heal.  I'm over that and then some.   So many questions and although some are being answered with time, I am still seeking some professional medical intervention.  I have to admit that I am being stretched incredibly in the kitchen.  I love to cook and especially to bake, and so have had some interesting experiences with both.  I've found a variety of flours and am still looking for some others.  Fortunately, I have access to some that I think few people do...when I google purple sweet potato flour and banana flour, very little comes up.  I'll have to discover some really excellent ways to use them and then post.

I keep having to remind myself that I am not on a simple cleansing diet that will end in two weeks.  This is for life, and it's for MY life.  It'll be interesting to see what turns life will hand me on this most excellent adventure.

Thanks for reading